NEWS

Discover the latest news from SOMA, our clients, relevant industries and beyond.

B.C. researchers discover rare brain disease in children
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B.C. researchers discover rare brain disease in children

Researchers at BC Children’s Hospital have discovered a new rare disease found to plague the healthy development of young brains.

The discovery, released in the scientific journal HGG Advances last month, pinpoints an overactive MARK4 gene as responsible for a rare disease found in two brothers that visit the hospital. 

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New rare disease discovered in teen brothers at BC Children’s Hospital
Client News Bridget Irwin Client News Bridget Irwin

New rare disease discovered in teen brothers at BC Children’s Hospital

Over years of genetic testing, a team of B.C. doctors has discovered a rare new disease in two teen brothers impacting their neurological development. Gain-of-function MARK4 is a change in MARK4 gene that makes it overactive. That particular gene is critical for brain and nervous system function, explained pediatrician Dr. Stuart Turvey of the BC Children’s Hospital.

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SportsCardiology BC announces first-of-its kind Cardiopulmonary Exercise Test (CPET) Laboratory in British Columbia
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SportsCardiology BC announces first-of-its kind Cardiopulmonary Exercise Test (CPET) Laboratory in British Columbia

VGH & UBC Hospital Foundation, a key philanthropic partner for Vancouver Coastal Health (VCH), in collaboration with SportsCardiologyBC, announced the recent launch of the cardiopulmonary exercise test (“CPET”) laboratory at UBC Hospital, the first CPET lab in British Columbia dedicated to the athletic and active cardiac population. The lab is designed to help in the early detection of undiagnosed cardiovascular disease and detect risk factors before a cardiac event occurs in both healthy individuals and those with past heart conditions. CPET equipment provides cardiologist with data to better understand the impact of physical activity on a person’s heart. It can also be used to enhance diagnosis and help establish baseline testing for tailored treatment.

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Stock Market Outlook: January 2024
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Stock Market Outlook: January 2024

Mike Winterfield, the founder and managing partner of Active Impact Investments, a Vancouver-based venture capital firm, says that there’s another industry of the U.S. stock market for which the election is a big deal: clean energy.

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Vancouver Sun: An Abbotsford boy's devastating diagnosis, and the clinical trial that saved his life
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Vancouver Sun: An Abbotsford boy's devastating diagnosis, and the clinical trial that saved his life

Emmett Willms was just five months old when his parents, Josh and Alisha, started noticing their first-born didn’t seem to be hitting typical physical development milestones other infants did, such as grasping adult fingers or holding his head up.

The Abbotsford family was referred to B.C. Children’s Hospital in Vancouver. He was diagnosed with spinal muscular atrophy, a rare genetic neurodegenerative disease that causes muscle weakness and wasting.

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CTV News: Vancouver grandmother loses both son and husband to pancreatic cancer in 55-day span
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CTV News: Vancouver grandmother loses both son and husband to pancreatic cancer in 55-day span

Lynda Blundell’s home is full of wonderful memories. The clock her son Phillip made for her hangs on her living room wall, as she dusts dozens of cannon figurines her husband Peter collected over the years.

Two years ago, Phillip was diagnosed with pancreatic cancer. A few months after his diagnosis, in August 2021, Phillip died at the age of 49. Sadly, the grief didn’t end there for the family. Fifty-five days after her son's death, Blundell's husband died of the same disease.

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Global News: Dream Lottery
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Global News: Dream Lottery

This morning’s interview with Dr. Harris, Harmehar Samra and mom, Amanjot Kaur, in support of BC Children’s Hospital’s Dream Lottery. The 2023 Dream Lottery grand prize draw winner will be announced tomorrow, Nov 2 during the Global TV Noon News.

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Ocean Legacy Foundation’s Co-Founder and Executive Director Chloé Dubois named to Canada’s Clean16 list for 2024
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Ocean Legacy Foundation’s Co-Founder and Executive Director Chloé Dubois named to Canada’s Clean16 list for 2024

Ocean Legacy Foundation (OLF), the Canadian non-profit organization that develops and implements worldwide plastic pollution response programs, announced that its Co-Founder and Executive Director Chloé Dubois was named to Canada’s Clean16 in the primary resources category. Chloé was selected from an initial pool of over 1,000 nominees and was chosen after screening and research by Delta Management, with advice from internal researchers and external advisors.

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Dream Lottery: Surrey girl receives life-saving treatment at BC Children’s Hospital
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Dream Lottery: Surrey girl receives life-saving treatment at BC Children’s Hospital

Harmehar Samra is an energetic five-year-old who loves swimming, skating and going to the park every day. Like most kids her age, it is a daily struggle to tear her away from the playground.

Looking at her, one would not know that the Surrey girl who started kindergarten in September has already had two open heart surgeries and four cardiac catheterizations.

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